Category Archive: Survivor Spotlight

Oct 11 2012

Survivor Spotlight – Dr. George Jallo

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An Interview with Dr. George Jallo, MD, Distinguished Member of SCTA medical Advisory Board, and SCT Researcher by SCTA Volunteer Joanne Glosser Jaeger What made you want to be a NS?I thought during medical school that it was the most exciting and yet stressful profession. As a neurosurgeon, it is a profession where you can …

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Oct 11 2012

Survivor Spotlight – Ellie Neff

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Ellie Neff – Portrait of a Dedicated Caregiver by SCTA Volunteer Joanne Glosser Jaeger Note from editor– Usually, I take the notes I get from the spotlite person and rework them into a story. However, in this case, Ellie’s writing was so eloquent, and from the heart, that I left the story in first person, …

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Oct 11 2012

Survivor Spotlight – Maddie Hayes

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Maddie Hayes by SCTA Volunteer Joanne Glosser Jaeger Maddie was originally diagnosed when she just turned 7 with a Pilocytic Astrocytoma at T7-T12. Her surgeries were in May 1998, October 2000, and July 2003. All surgeries were performed at Oregon Health Science University in Portland, Oregon. Dr. Joseph Piatt did the first one, and Nathan …

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Oct 11 2012

Survivor Spotlight – Dr. Fred Epstein

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“Fred” – Interview with and thoughts about Dr. Fred Epstein by SCTA Volunteer Joanne Glosser Jaeger Editors note: Below are highlights of my interview with Dr. Fred Epstein, world-renowned pediatric neurosurgeon who operated on many of us in the SCTA, myself included. As we all agree, Fred is a wonderful, caring man who was always …

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Oct 11 2012

Survivor Spotlight – Stacie Switzer

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Stacie Switzer – A Mother’s Day Story of Love, Courage and Choices by SCTA Volunteer Joanne Glosser Jaeger Stacie with daughter Maddie (2) and husband Michael Home City: I was born and raised in a small farm town in Ohio. I currently reside in the Chicago area. Occupation: I am an attorney with a pharmaceutical …

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Oct 11 2012

Survivor Spotlight – Bill Irwin

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Willy’s Story by SCTA Volunteer Joanne Glosser Jaeger Cher and Bill on vacation at Wanaka, New Zealand last summer   Vital Stats: 45, married to Cheryl for 24 years. 3 boys (Tom 20, Sam 18, and Ben 14). Tom is currently on exchange at Purdue University. He is studying Mechanical Engineering and got the chance …

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Oct 11 2012

Survivor Spotlight – Stephen Ries

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Tracy and Jon Ries, parents to Stephen, age 4. As told by Tracy… By Volunteer Joanne Glosser Jaeger Live in the Shenandoah Valley of Virginia. Tracy: I worked as a software engineer/support manager and quit my job to stay home with my children. Jon: An HVAC service technician. Family Life: Seven children (two of which …

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Oct 11 2012

Survivor Spotlight – Steve Hall

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Steve Hall – There’s always for a good love story… by Volunteer Joanne Glosser Jaeger Tell us about yourself: I’m 51 and a software engineer. I design software which is embedded in handheld devices. Right now I’m working on a device that tests network cables. I live in Vista, California in the San Diego area …

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Oct 11 2012

Survivor Spotlight – Scratch and Help

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Scratch and Help Fundraiser Participants By SCTA Volunteer Joanne Glosser Jaeger Melissa & Maddie Hayes, Hood River, OR. Maddie has an Pilocytic Astrocytoma T7-T12, 4 surgeries including titanium rods for Scoliosis caused by the Tumor. Mom and daughter both love to scrapbook and family loves to camp. Maddie and family attended the SCTA conference in …

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Oct 03 2012

Survivor Spotlight – Tom Guzik

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Tom Guzik – a great father and husband, a dedicated friend by SCTA Volunteer Joanne Glosser Jaeger Tumor: Intra-medullary tumor at C2-C3 Dr Fred Epstein performed surgery at NYU Medical Center, Tisch Hospital,June 1990 Hobbies: Reading, running, growing a vegetable garden, hiking, web page design and creation, Community Swim team. Favorite vacations: Theme Parks with …

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