Category Archive: SCT Adult Stories

Jul 29 2016

Jo Blackford’s Story

Age 41. Female. Seattle, WA. Type: Myxopapillary ependymoma of the filum terminale, Grade I, L2-L3. Surgery: late April 2016. Dr Timothy Steege. Swedish Medical Center, Seattle. I found this website after my surgery, and to be honest, I’m pleased I didn’t read too much about SCT beforehand. Call it optimism or denial, but I wasn’t …

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Sep 11 2014

Caden’s Story

nstone110680@gmail.com Age of surgery: 2 months old Caden had a Tumor inside and outside his Spinal Cord through to his neck. The Tumor is rare and no studies on it… They removed most of it when he was 2 months old. Caden then had a Stroke to the Right Side of his Brain. Caden they …

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May 04 2014

Chelsea Grant’s Story

Age: 38 City/State: Seattle, WA Type: Intramedullary Ependymoma Grade II Surgery: July 2013 Chelsea Grant’s Story My name is Chelsea Gant, I was diagnosed with a grade II Intramedullary Ependymoma last year (2013) at the age of 38. I am from Seattle Washington. Last March was the happiest time of my life. I had only been …

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Apr 18 2013

Kim’s Story

Age: 45 Type: Sub-Ependymoma / T2-T3 Hospital: St. Joseph’s Hospital, Phoenix, AZ Neurosurgeon: Dr. Tara Kaibara / Dr. Spetzler, both with Barrows Neurological Institute Surgery: 2009 Radiation/Chemo: None Kim’s Story I had a successful sub-ependymoma spinal cord tumor resection at t2-t3 in Oct. 2009! My tumor was fully encased inside my spinal cord! I began …

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Oct 13 2012

Nancy’s Story

Age: 41 City/State: Santa Barbara, CA Type: Schwannoma at C6-C7 Hospital: UCLA Santa Monica Orthopaedic Hospital Neurosurgeon: Dr. Langston Holly Surgery: March 2012 Radiation/Chemo: one radiosurgery treatment Nancy’s Story In December 2011, I was walking through a parking lot when I suddenly felt an electric-like shock in my right arm that extended from my upper …

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Sep 11 2012

Van’s Story

chevy1@cogeco.ca Age: 38 City/State: Belleville, Ontario, Canada Type: Ependymoma, C2 – T9 Hospital: Kingston General Hospital Neurosurgeon: Dr. Fraser Saunders Surgery: 1997 Radiation/ Chemo: No Van’s Story Diagnosed with a spinal cord tumor, I was taken by surprise. If not for the Internet, it probably would have killed me. I went through months of overall …

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Sep 11 2012

Vickie’s Story

vickiebouten@hotmail.com Age:50 City/State: Bend, Oregon Type: Swanoma T11-L4 Hospital Wascoe Medical/Bend Memorial Neurosurgeon: Flemming/Kent Yundt Surgery: 2003-2006 Radiation/Chemo: No Vickie’s Story I’m so glad I found this website, I’ve searched on line since I was diagnosed and found little to make me feel better and not so alone. My journey with orthopedics and neurosurgeons started …

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Sep 11 2012

WhiteAngel’s Story

whiteangel_0@hotmail.com Age: 37 City/State: Sydney Australia Type: Glioma, Astroctoma, C2 – T6 Hospital: Rolyal Alexandra Childrens Hospital Neurosurgeon: Dr. S. Schriver Surgery: 1970 Radiation/ Chemo: Yes – Radiotherapy WhiteAngel’s Story At the age of 4 ½ in April 1970, One day my mum found me on the floor all twist up, having some kind of …

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Sep 11 2012

Wendy’s Story

Sliceman91@cs.com Age: 24 City/State: Clayton, Indiana Type: Schwanoma, C1 & C2 Hospital: St. Vincent– Indianapolis, Indiana Neurosurgeon: Dr. Dean G. Karahalios, MD Surgery: February 2004 Radiation/ Chemo: No Wendy’s Story In hindsight, I can track symptoms of my tumor back at least to two years ago. But I really didn’t see a Dr. until last …

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Sep 11 2012

Uta’s Story

Email: Not listed Age: 30 City/State: Cincinnati, OH Type: Sub-Ependymoma, T12 – L1 Hospital: Christ Hospital Neurosurgeon: Dr. William Tobler, Mayfield Spine Institute Surgery: March 1998 Radiation/ Chemo: No Uta’s Story On February 28,1998, I woke up with a little numbness and tingling in my feet. I was 28 years old and had never experienced …

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