Welcome

We’re glad you found us.

SCTA is a caring community on the web, established by people just like you, who have been given the overwhelming diagnosis of a spinal cord tumor.  You, and those close to you undoubtedly have many questions.

Adjusting to this diagnosis can be less frightening in the company of others who have gone through the ordeal, and can share their experiences. Please browse, get to know us, join the discussion forum, ask questions, and come back as often as you like.

Knowledge can have a healing effect: there is a wealth of information here for you. In time, you will be able to add an account of your own experiences if you wish. Above all, feel at home. You are among friends. You are not alone.

Caden’s Story

nstone110680@gmail.com Age of surgery: 2 months old Caden had a Tumor inside and outside his Spinal Cord through to his neck. The Tumor is rare and no studies on it… They removed most of it when he was 2 months old. Caden then had a Stroke to the Right Side of his Brain. Caden they …

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Lucas’ Story

mtahlbach@hotmail.com Age of surgery: 8 yrs old City/State: Las Vegas Nevada Type: Ganglioglioma C1-just past C5,large brain stem cyst Hospital: Lucille Packard Childrens Hospital at Stanford Neurosurgeon: Dr. Michael Edwards Surgery: January 2000 Radiation/Chemo: No/No Lucas was 8 yrs old when he started to complain of neck pain in the middle of the night. 6 …

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Guest Speaker – Dr. Eric M. Massicotte (Intramedullary Tumor Surgery)

Speaker: Dr. Eric M. Massicotte MD, MSc FRCS(C) Bio: A graduate of the University of Ottawa School of Medicine in 1995, Dr. Massicotte entered the Neurosurgical Training Program at the University of Manitoba in 1995 until 1999 at which time he transferred to the University of Toronto to complete is neurosurgical training. He became a …

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Chelsea Grant’s Story

Age: 38 City/State: Seattle, WA Type: Intramedullary Ependymoma Grade II Surgery: July 2013 Chelsea Grant’s Story My name is Chelsea Gant, I was diagnosed with a grade II Intramedullary Ependymoma last year (2013) at the age of 38. I am from Seattle Washington. Last March was the happiest time of my life. I had only been …

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Journey with a Spinal Cord Tumor

Eileen Rogers-Coughlin was recently diagnosed with a Intramedullary Ependymoma spinal cord tumor. Check out her video below. She is working hard to raise awareness for people with SCTs. https://www.facebook.com/pages/My-Journey-with-a-Spinal-Cord-Tumor/273535189489689 http://www.myspinalcordtumor.blogspot.com/

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2014 CERN Foundation Ependymoma Awareness Day

Visit the CERN Foundation website for more information on the 2014 Ependymoma Awareness day on April 10th. Click the image below to visit the website.

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2014 SCTA Survivor Survey

The Spinal Cord Tumor Association would like to thank you for visiting our website. If you are a Spinal Cord Tumor Survivor, please take a moment to complete the following survey.  Hope * Strength * Victory

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2013 SCTA Conference: Nick Buettner/Steven Hall

2013 SCTA Conference Speaker: Nick Buettner Topic: Spinal Cord Tumor Story                 2013 SCTA Conference Speaker: Steven Hall Topic: Fitness & Nutrition for SCT Survivors                             Click here to listen to the recording.

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