We’re glad you found us.

SCTA is a caring community on the web, established by people just like you, who have been given the overwhelming diagnosis of a spinal cord tumor.  You, and those close to you undoubtedly have many questions.

Adjusting to this diagnosis can be less frightening in the company of others who have gone through the ordeal, and can share their experiences. Please browse, get to know us, join the discussion forum, ask questions, and come back as often as you like.

Knowledge can have a healing effect: there is a wealth of information here for you. In time, you will be able to add an account of your own experiences if you wish. Above all, feel at home. You are among friends. You are not alone.

Nadav’s Story

Nadav is a 14 year old boy who was diagnosed with Neurofibromatosis Type 1 at the age of 2. He’s been having regular head and spine MRIs since the age of 4, and in 2013 started developing an intramedullary tumor in the cervical spine, at C3. In mid-2016 his medical team reached the conclusion that while the tumor was probably a …

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Aaron's Story

Aaron’s Story

This video is about Aaron’s Schwannoma tumor and his treatment at Johns Hopkins Hospital.  

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Jo Blackford’s Story

Age 41. Female. Seattle, WA. Type: Myxopapillary ependymoma of the filum terminale, Grade I, L2-L3. Surgery: late April 2016. Dr Timothy Steege. Swedish Medical Center, Seattle. I found this website after my surgery, and to be honest, I’m pleased I didn’t read too much about SCT beforehand. Call it optimism or denial, but I wasn’t …

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2015 CERN Foundation Ependymoma Awareness Day

Visit the CERN Foundation website for more information on the 2014 Ependymoma Awareness day on May 5th, 2015. Click the image below to visit the website.

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Chance for Life – 10th Anniversary

The Chance for Life charity event to fund a cure for pediatric spinal cord cancer is coming up February 21, 2015. Click the graphic below to learn more about the 10th anniversary of this exciting event.

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Caden’s Story

nstone110680@gmail.com Age of surgery: 2 months old Caden had a Tumor inside and outside his Spinal Cord through to his neck. The Tumor is rare and no studies on it… They removed most of it when he was 2 months old. Caden then had a Stroke to the Right Side of his Brain. Caden they …

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Lucas’ Story

mtahlbach@hotmail.com Age of surgery: 8 yrs old City/State: Las Vegas Nevada Type: Ganglioglioma C1-just past C5,large brain stem cyst Hospital: Lucille Packard Childrens Hospital at Stanford Neurosurgeon: Dr. Michael Edwards Surgery: January 2000 Radiation/Chemo: No/No Lucas was 8 yrs old when he started to complain of neck pain in the middle of the night. 6 …

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Guest Speaker – Dr. Eric M. Massicotte (Intramedullary Tumor Surgery)

Speaker: Dr. Eric M. Massicotte MD, MSc FRCS(C) Bio: A graduate of the University of Ottawa School of Medicine in 1995, Dr. Massicotte entered the Neurosurgical Training Program at the University of Manitoba in 1995 until 1999 at which time he transferred to the University of Toronto to complete is neurosurgical training. He became a …

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Chelsea Grant’s Story

Age: 38 City/State: Seattle, WA Type: Intramedullary Ependymoma Grade II Surgery: July 2013 Chelsea Grant’s Story My name is Chelsea Gant, I was diagnosed with a grade II Intramedullary Ependymoma last year (2013) at the age of 38. I am from Seattle Washington. Last March was the happiest time of my life. I had only been …

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